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Amelia McNeilly

Pink Patriot - My desire is to share with you the journey God has me on. Whether in joy hardship, I hope that my blog offers a place of respite, and bring joy to your heart!

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Daily Inspirations- 8.16.17

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Daily Inspirations- 8.15.17

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Daily Inspirations 8.14.17

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Articles, Blog Series, Christian Living, Disability, The View Looks Fine From Here, Uncategorized

The View a Looks Fine From Here – The Struggle is Real

Hey friends. Normally I post about Nehemiah on Thursdays but I’m a bit behind this week so I only posted once. Hopefully, I can post on  both days again starting Tuesday of next week. To read the one from this week posted on Tuesday visit here.

It’s one of those Thursdays —actually make that weeks! As the popular phrase goes, “the struggle is real.” That should be the theme of my life these days. The title of this series is titled, “The View Looks Fine From Here,” and the only view I have had this week has been from my bed. I read the verse from Psalm 128:24 which states,

“This is the day the Lord has made, let us rejoice and be glad in it.”

However, we all have days where we do not “feel” like rejoicing, and that has been me this week. I have slept and felt woozy for the last few days because of a new medication.

Monday, I started taking s muscle relaxer for my spasticity from Cerebral Palsy. I’ve always had problems with that but it has been worse since I have been sick this past year. Spasticity makes my muscles extremely tight and painful, and lately I have not been able to relax or sleep well because of it. Thankfully, on Monday during my visit with Kim Gaither (Urology PA), she noticed how severe it was and is referring me to a new neurologist to help with that. However, in the meantime, she gave me a muscle relaxer that is supposed to work well with CP. And it is working but it is making me sleep a lot and I feel like a zombie…ha! Although today I realized that the medicine has helped, and for now the side effects are worth it. I had been praying for less pain and more sleep and God has answered those prayers so instead of complaining about the negative aspects, I was convicted that I need to be thankful. It has brought much pain relief for me and I’m truly grateful  for that. Praise Jesus. Hopefully as I continue to take it the side effects will become less, but for now I’m glad for the ways it is helping.

Thanks again for all of your thoughts, prayers, and encouraging words. God uses them to fill my days with joy!

Leave a Comment May 11, 2017

Articles, Christian Living, Disability, Family, Friendship, The View Looks Fine From Here, Uncategorized

Hope a Little More Part 2

In 2014, I wrote a post titled “Hope a Little More,” and now almost three years later it seems appropriate again. I wrote that post prior to a major surgery after finding out my colon had shut down. I honestly had no idea what to expect in the future. Fast forward two years later and I am finding myself in the same boat, but instead of my colon it is now my bladder that is causing me to have so many problems. I have been on antibiotics for almost a year now continually, and my infection went sepsis a month ago, and I am now on super strong treatments over the next couple of months.

On Monday, I went to  Charlotte to see Dr. K’s (urologist) physicians assistant. Usually my time with her is not very productive and Monday’s visit was much of the same. However, she did tell me that she thought my options surgically were limited and that even if I had surgery that my quality of life from these infections  would not improve. She also mentioned two other small options for treatment but those may not work either and I would have to wait for final decisions from Dr. K. Unfortunately, I am not scheduled to see him until October and no matter how many times I have tried they will not move up the appointment date.

The conclusion for now is that nothing else can really be done except to treat the infection until it cannot be treated anymore. The PA wants me to stay on my treatment plan with the Infectious Disease doctor and do what he says until I see Dr. K in October. Even though I knew this was most likely the case going in, and is something my parents and I have discussed many times, it is still hard to hear. No matter how prepared you are, no one wants to hear that nothing else can be done.

Currently, I am on an antibiotic treatment for two more months and then we will figure out the next treatment plan after that. Hopefully the one I am on now will continue to work well for the duration of the time I am on it, but it may not. The only thing we can do is keep doing what we are doing and pray, pray, pray! The main goal right now is to keep it from going sepsis again.

I am a planner by nature and I like to have a plan and timeline, but I have no idea how long we can make the treatments work or when the infection will get bad again. I have been reminded this week more than ever that I’m not the one in charge of my life, plans, or desires, but Jesus is. He alone knows what my future holds and my trust in Him is being  pushed to another level. My  dear friend Kristin texted earlier this week and said that I was going to get to know God in a unique and new way through this. She also mentioned that this is the type of surrender and trust that can only come from a situation like this –the kind we can only get when situations are completely forced out of our hands. She is right, and even though this week has been hard, God has continued to carry and give me hope with each new day.

One passage that has comforted me lately is Psalm 27:13-14 which states,

“I would have despaired unless I had believed that I would have seen the goodness of the Lord in the land of the living. Wait for the Lord;Be strong and let your heart take courage; Yes, wait for the Lord.”

Moving forward I am going to find the good in each day and enjoy the little things God brings my way. I will also allow His courage to carry me, and most importantly,

I will not lose hope because of Jesus. He is HOPE, and it my privilege to serve Him all of my days.

As one of my favorite songs from “For King and Country” says,

“I will dance a little, laugh a little, and hope a little more.”

Thanks to everyone one for your continued prayers. Pray that the doctors have wisdom for future treatments and that this current round of treatment continues to work. Pray for my parents as they continue to care for me. I know it’s not easy for them!either so please pray for their encouragement. Also, pray that that we have peace beyond our understanding no matter the outcome, and that we are able to “hope a little more” each day. Thanks so much.

Leave a Comment May 5, 2017

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Daily Inspirations – February 10, 2017

“Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.” ~James 1:17

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Daily Inspirations – February 5, 2016

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Daily Inspirations – February 1, 2017

“None of these things move me; nor do I count my life dear to myself, so that I may finish my race with joy, and the ministry which I received from the Lord Jesus, to testify to the gospel of the grace of God” ~Acts 20:24

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Daily Inspirations – January 20, 2017

“Weeping may last for a night, but joy comes in the morning.” ~Psalm 30:5

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Daily Inspirations – January 9, 2017

“The heavens declare the glory of God; the skies proclaim the work of His hands.” ~Psalm 19:1

 

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Welcome!

Hi friends. Welcome to my website. I have a disability called Cerebral Palsy, but have learned over the years that my CP does not define me. Jesus Christ is my identity, not a disability. Read More…

Christy Catherine Marshall
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Been watching royal baby coverage. I just can’t Been watching royal baby coverage. I just can’t help it ha! Welcome to the world the new royal baby! 💙 #royalfamily #british
I am so excited for my dear friends @nataliesosmar I am so excited for my dear friends @nataliesosmart and @jantzenmc on the upcoming birth of their sweet baby girl. Their announcement is below. Congrats! Love yall can cannot wait to meet Jubilee Amelia. I am so honored. Praising God for this joyful season of your life. //
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Received this beautiful quilt today made and given Received this beautiful quilt today made and given to me by my sweet friend Joy (@themakingsofjoy). This blessed and encouraged my soul greatly today. Brought tears to my eyes. Thanks again my friend! Love you! Be sure to check out her other quilts and gorgeous designs on Etsy and Instagram. #themakingsofjoy #happymail #encouragement #friendship
Needed this reminder and truth from Scripture toda Needed this reminder and truth from Scripture today!
Lucy loves having our friends Jessie and Zeke visi Lucy loves having our friends Jessie and Zeke visiting this morning, especially Zeke. Ha!
Amen #daringtohopebook Amen #daringtohopebook
Received this call in the mail today from the swee Received this call in the mail today from the sweetest kiddos. I love it and it made my day! So sweet and thoughtful. 💕😍💕
My dear and sweet friend Josie who I met at CIU (w My dear and sweet friend Josie who I met at CIU (walker 1 Girls) came to visit with her daughter Lydia. They are on a road trip from Ohio and I’m grateful they came by for the afternoon. It was good for my soul. #thankful #friendship #encouragement 💕💕💕
I’m not the only one in my happy place. I love m I’m not the only one in my happy place. I love my Sissy girl 💕🐕💕 #happy #dogsofinstgram #sissy
I love my Sissy Girl! 💕🐕 I love my Sissy Girl! 💕🐕
Happy Wednesday! So thankful for this Scripture an Happy Wednesday! So thankful for this Scripture and the anchor I have in Christ no matter what my circumstances are. He is my hope! ⚓️
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Hi friends. Welcome to my website. I am a southern girl who belongs to Jesus, and seek to glorify Him daily. I currently reside in NC with my sweet dog Lucy. I am a writer and speaker and enjoy sharing about what God has done for me. Read More…

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Yes and amen! ~Amelia 💜 Yes and amen! ~Amelia 💜
Enjoyed spending some time earlier today with my d Enjoyed spending some time earlier today with my dear friend @beckyabernier. So thankful for her friendship and her visit always encourages my soul! #friendship #joyinthelord #goodfriday
Amen! Love this quote from Lottie Moon! Amen! Love this quote from Lottie Moon!
The view looks fine from here. Enjoying sitting ou The view looks fine from here. Enjoying sitting outside for a bit. #thankful #saturdays #happyplace
Been watching royal baby coverage. I just can’t Been watching royal baby coverage. I just can’t help it ha! Welcome to the world the new royal baby! 💙 #royalfamily #british
I am so excited for my dear friends @nataliesosmar I am so excited for my dear friends @nataliesosmart and @jantzenmc on the upcoming birth of their sweet baby girl. Their announcement is below. Congrats! Love yall can cannot wait to meet Jubilee Amelia. I am so honored. Praising God for this joyful season of your life. //
"Name drop for our girl. Also her middle name Amelia comes from our sweet friend @ameliamcneilly who is a Godly friend that faithfully prayed for her. Also we love this sign from Gloriously Restored. #carolinajubilee"
Received this beautiful quilt today made and given Received this beautiful quilt today made and given to me by my sweet friend Joy (@themakingsofjoy). This blessed and encouraged my soul greatly today. Brought tears to my eyes. Thanks again my friend! Love you! Be sure to check out her other quilts and gorgeous designs on Etsy and Instagram. #themakingsofjoy #happymail #encouragement #friendship
Needed this reminder and truth from Scripture toda Needed this reminder and truth from Scripture today!
Lucy loves having our friends Jessie and Zeke visi Lucy loves having our friends Jessie and Zeke visiting this morning, especially Zeke. Ha!
Amen #daringtohopebook Amen #daringtohopebook
Received this call in the mail today from the swee Received this call in the mail today from the sweetest kiddos. I love it and it made my day! So sweet and thoughtful. 💕😍💕
My dear and sweet friend Josie who I met at CIU (w My dear and sweet friend Josie who I met at CIU (walker 1 Girls) came to visit with her daughter Lydia. They are on a road trip from Ohio and I’m grateful they came by for the afternoon. It was good for my soul. #thankful #friendship #encouragement 💕💕💕
I’m not the only one in my happy place. I love m I’m not the only one in my happy place. I love my Sissy girl 💕🐕💕 #happy #dogsofinstgram #sissy
I love my Sissy Girl! 💕🐕 I love my Sissy Girl! 💕🐕
Happy Wednesday! So thankful for this Scripture an Happy Wednesday! So thankful for this Scripture and the anchor I have in Christ no matter what my circumstances are. He is my hope! ⚓️
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