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Amelia McNeilly

Pink Patriot - My desire is to share with you the journey God has me on. Whether in joy hardship, I hope that my blog offers a place of respite, and bring joy to your heart!

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Disability

Hope a Little More

2014 has been an incredibly hard year. Depressing way to start a post I know, but it is true. Over the past several years my health has been steadily declining, but for a long time I was not sure why. However, in October, I received some answers. Because of my Cerebral Palsy, I have always had something called Neurogenic Bowel Syndrome, but found out recently that my colon and intestines have completely shut down which is why I am staying so sick. My situation is not the norm due to previous surgeries I’ve had which make things a bit more complicated, and it took a while to find a specialist qualified to treat my case. God finally provided a surgeon and after many appointments and tests, I am now awaiting a surgery date which I hope will be sometime at the beginning of January. There are lots of other issues alongside this that I will not go into here, but God knows all of the details.

This year has been rough but in the midst of it I have grown closer to the Lord and I better understand the passage in Philippians 4 that says He will give you peace beyond your understanding. I know that peace now. Before we found this surgeon several of my doctors told us nothing else could be done and left my family thinking that this was it. Also, I’ve had to move in with my parents until I am better, take a leave of absence from my job, and basically become completely dependent;  which if you know me at all you know that has not been easy. Throughout the years I have had many health challenges but I would say this has been the hardest. It’s emptied me of everything I have but God is daily giving me the strength I need to make it and that has been freeing. I am completely out of control and there is nothing I can do to change my circumstances but I know the One who can.  There are so many unknowns as to what is ahead and questions such as, “Will the surgery be successful? Will healing come soon? How is all this going to turn out?” I do not have the answers but God does and that is all that matters. After all, my life is not mine and there is nothing more freeing than turning my life and everything I have over to Jesus.  That is the definition of true freedom. One of my goals for 2015 is to live in this freedom and be joyful no matter what the circumstances.  I am thankful daily for the hope of Christ, and as one of my favorite songs states, I will “dance a little, laugh a little, and hope a little more.”

I would like to give a special thanks to my mom and dad. They have been amazing through this and take such good care of me. I couldn’t do this without them.  Also, to all my friends thanks for being so gracious and encouraging. I know many of you have prayed for me over the past few months, and I greatly appreciate all the prayers you have sent my way.  Please continue to pray as I move forward and that I get a surgery date soon. Thanks so much and please let me know how I can be praying for you. I hope you all have a blessed new year and a wonderful 2015!

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45 Comments December 30, 2014

Comments

  1. Renee says

    December 30, 2014 at 6:24 pm

    Praying for you friend!

    Reply
    • admin says

      December 30, 2014 at 7:03 pm

      Thanks Renee, Love you!

      Reply
  2. Donna says

    December 30, 2014 at 6:40 pm

    Amelia we love you and pray for your healing. You are such an inspiration to all who know and love you. We thank God for the life you live for all the world to see. You are surely a Godly Woman.

    Reply
    • admin says

      December 30, 2014 at 7:03 pm

      Thanks Donna, Love you!

      Reply
  3. lena says

    December 30, 2014 at 6:57 pm

    Amazing lady,you are!!

    Reply
    • admin says

      December 30, 2014 at 7:04 pm

      Thanks Lena!

      Reply
  4. Christine says

    December 30, 2014 at 7:30 pm

    I am so touched by your faith!! May the Lord continue to keep you and protect you. You are in my prayers.

    Reply
  5. Amber says

    December 30, 2014 at 7:31 pm

    You are the strongest woman I know! You show others Christ by your attitude and faith. Still praying!

    Reply
    • admin says

      December 30, 2014 at 8:10 pm

      Thanks Amber! Love you and so thankful for your friendship. Praying for you too!

      Reply
  6. Christine says

    December 30, 2014 at 7:32 pm

    Don’t know if my other post went through but you have touched me so much. God bless and protect you.

    Reply
    • admin says

      December 30, 2014 at 8:09 pm

      Thanks, Christine! Love you so much!

      Reply
  7. Sarah says

    December 30, 2014 at 8:40 pm

    Amelia- What an encouragement and inspiration you are to me! Praising God for giving you the peace to rest fully in Him. Praying for you always. Love you!

    Reply
    • admin says

      December 30, 2014 at 9:14 pm

      Thanks, Sarah! So grateful for your prayers and friendship. Love you!

      Reply
  8. Gayle says

    December 30, 2014 at 9:04 pm

    Oh, Amelia. I know this is so hard….praying for you and trusting God’s healing in your life! Love to you and your family!

    Reply
    • admin says

      December 30, 2014 at 9:14 pm

      Thanks so much, Gayle! Hope you are doing well! <3

      Reply
  9. Shoney Moses says

    December 30, 2014 at 9:47 pm

    You are a true trooper for Jesus Christ . Love reading anytg posted from you cause I know you are sincere with everything you post . Bless you lady , praying for you daily that through it all ahead , God holds on tight and gives you freedom from all your pain . Love you

    Reply
    • admin says

      December 30, 2014 at 10:02 pm

      Thanks Shoney! Love you!

      Reply
  10. Della says

    December 30, 2014 at 10:01 pm

    Amelia, you and JAmie started out together in kindergarten. I still have a picture of you and her at kindergarten graduation. Jamie kinda took you under her wing then and who knew that someday you too would find each other again and become Family by marriage. GOD started you and her on this path so many years ago and I am proud that she is now part of your family. May God bless and keep you. I will be praying for you in 2015.

    Reply
    • admin says

      January 1, 2015 at 8:52 pm

      Thanks so much, Della. I love Jamie like a sister and so thankful that she is a part of our family. Thanks for your prayers and encouragement. Love you!

      Reply
  11. Susan says

    December 30, 2014 at 10:42 pm

    Amelia, it’s such an encouragement to read the things you post. You are an inspiration. To me as well as others. God is in control of everything and I can’t wait to see what He’s going to do in all of this. My Thoughts and prayers will be with you.

    Reply
  12. Becky says

    December 30, 2014 at 10:51 pm

    Amelia, Praying for you! Your strength in the Lord and growth in your faith in Him is inspiring! Love you lots!

    Reply
  13. Tina says

    December 30, 2014 at 11:30 pm

    Love and prayers for you and your mom and dad. You are all the sweetest most loving people. Blessed to know you all. Hoping all goes well.

    Reply
    • admin says

      January 1, 2015 at 8:51 pm

      Thanks so much, Tina! Love you!

      Reply
  14. kim says

    December 31, 2014 at 12:02 am

    You are amazing. Praying for you Ameila.

    Reply
    • admin says

      January 1, 2015 at 8:50 pm

      Thanks, Kim!

      Reply
  15. Martha Kelly says

    December 31, 2014 at 1:02 am

    Amelia, I am so sorry that you have had a difficult 2014. I did not know of these current health problems that you mentioned. Please know that you and your family are in my thoughts and prayers. Let us know when the surgery is scheduled.

    You are a wonderful young lady……just as you were a little girl. I always enjoyed talking with you at Casar Elementary. And, Katie looked forward to going to Casar School to play with ” Amelia ” on some of the teacher work days……remember?

    Take care of yourself and know how much you are loved and respected by others.

    Peace and Love, Martha Kelly

    Reply
    • admin says

      January 1, 2015 at 8:50 pm

      Thanks so much, Mrs. Kelly! Yes I remember those times well and treasure them. Those are some good memories. Thanks for your sweet words and your prayers! I just found out yesterday that my surgery is scheduled for January 23. So thankful for that!

      Reply
  16. Delores Dedmon says

    December 31, 2014 at 1:51 am

    I ask Ellen about you so many times. I trust God will wrap his arms around you and whisper words of encouragement and hope. I am praying and keeping you in my thoughts. I will ask Ellen to keep me posted as to your surgery so we can send prayers up before and during the day of your surgery. You are an exceptionably talented and gifted person. I know God has blessed you with the will to get better and to continue with your life of love and hope for all of us. You have been very patient and trusting in God’s will. I pray for your family especially your Mom and Dad to be there and keep you strong. God does answer our prayers and he is always there.

    Reply
    • admin says

      January 1, 2015 at 8:49 pm

      Hey Delores! Thanks so much for your sweet words of encouragement and your continued prayers. I greatly appreciate them!

      Reply
  17. Donna says

    December 31, 2014 at 1:54 am

    Love you Amelia♡ Praying for you and your healing. You have always been a special girl to me. Think of you often.

    Reply
    • admin says

      January 1, 2015 at 8:48 pm

      Thanks so much Donna! Thankful for you. Love you!

      Reply
  18. Brenda Dixon says

    December 31, 2014 at 1:55 am

    I will be praying for you sweet girl . . .

    Reply
    • admin says

      January 1, 2015 at 8:48 pm

      Thanks so much for the prayers, Brenda!

      Reply
  19. millie mcNeilly says

    December 31, 2014 at 2:35 am

    Hi Amelia, We could be relatives, I do not know but, I do know we are friends, Its been great getting to know you and to pray for you! You for sure are a Godly woman and its been such a delight to read everything you write and post. You have encouraged me in my daily walk with faith. Amelia keep growing in faith with God everything is possible! amen? amen! Keep praying for me as well. I am wondering what your Dads Dads name is? could you tell me this? Your parents seem like wonderful people, but, so are you Amelia. Fill me in as to what date you go to the surgeon, will you. Praying for healing for you and much happiness and love and an abundance of blessings, May 2015 give you the desires of your heart Amelia:))) love and hugs Millie

    Reply
    • admin says

      January 1, 2015 at 8:47 pm

      Thank you so much, Millie! I’ve enjoyed getting to know you and appreciate all of your prayers and encouragement. Oh, and my dad’s father’s name is Donald McNeilly! 🙂

      Reply
  20. Sharon W Brackett says

    December 31, 2014 at 3:01 am

    My sweet friend Amelia….. God has great things in store for you girlfriend:) I have prayed many prayers for you during your lifetime, and I won’t stop now:) I Love You my precious sister in Christ!

    Reply
    • admin says

      January 1, 2015 at 8:47 pm

      Thanks so much Sharon! Love you!

      Reply
  21. Daphne Cabiness says

    December 31, 2014 at 3:14 am

    Amelia,
    I am praying for you. I love you and admire you in many ways. Continue to trust in God.

    Reply
    • admin says

      January 1, 2015 at 8:46 pm

      Thanks so much, Daphne! Love you too! Hope you are doing well.

      Reply
  22. Sharon Brackett says

    December 31, 2014 at 12:21 pm

    Amelia, over the years I have been amazed to watch the strength that you have. Not outward strength but a strength that comes from the inside that can’t be explained in any other way than complete reliance on your Heavenly Father. You are so amazing. You meet each of life’s challenges head on with God pushing you through. I know this latest challenge has bee exceptionally hard but you have put your faith in the only one that can really help you. He will be with you in what ever is ahead. Harrill and I will continue to pray for yor you. You keep up the good fight. Love you bunches.

    Reply
    • admin says

      January 1, 2015 at 8:46 pm

      Thanks so much for your sweet words Sharon. So thankful for your prayers. Love you!

      Reply
  23. Sherry Shrum says

    December 31, 2014 at 1:55 pm

    Amelia, this message hits deep with me and just what I needed this morning. You are such a beautiful young lady and I will definitely be praying for you. Thank you for being such an inspiration of faith!!!

    Reply
    • admin says

      January 1, 2015 at 8:45 pm

      Thank you so much, Sherry! I always enjoyed the times we had together and I still have the journal that you gave me when I graduated high school! Hope you are doing well and thanks for your continued prayers and encouragement.

      Reply
  24. Terry says

    December 31, 2014 at 2:57 pm

    Prayers for you, Amelia. As I run with your mom these days, we share our prayers and hopes for our kids. You are amazing and I lift your health in my prayers.

    Reply
    • admin says

      January 1, 2015 at 8:44 pm

      Thank you so much Terry!

      Reply

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Enjoyed spending some time earlier today with my d Enjoyed spending some time earlier today with my dear friend @beckyabernier. So thankful for her friendship and her visit always encourages my soul! #friendship #joyinthelord #goodfriday
Amen! Love this quote from Lottie Moon! Amen! Love this quote from Lottie Moon!
The view looks fine from here. Enjoying sitting ou The view looks fine from here. Enjoying sitting outside for a bit. #thankful #saturdays #happyplace
Been watching royal baby coverage. I just can’t Been watching royal baby coverage. I just can’t help it ha! Welcome to the world the new royal baby! 💙 #royalfamily #british
I am so excited for my dear friends @nataliesosmar I am so excited for my dear friends @nataliesosmart and @jantzenmc on the upcoming birth of their sweet baby girl. Their announcement is below. Congrats! Love yall can cannot wait to meet Jubilee Amelia. I am so honored. Praising God for this joyful season of your life. //
"Name drop for our girl. Also her middle name Amelia comes from our sweet friend @ameliamcneilly who is a Godly friend that faithfully prayed for her. Also we love this sign from Gloriously Restored. #carolinajubilee"
Received this beautiful quilt today made and given Received this beautiful quilt today made and given to me by my sweet friend Joy (@themakingsofjoy). This blessed and encouraged my soul greatly today. Brought tears to my eyes. Thanks again my friend! Love you! Be sure to check out her other quilts and gorgeous designs on Etsy and Instagram. #themakingsofjoy #happymail #encouragement #friendship
Needed this reminder and truth from Scripture toda Needed this reminder and truth from Scripture today!
Lucy loves having our friends Jessie and Zeke visi Lucy loves having our friends Jessie and Zeke visiting this morning, especially Zeke. Ha!
Amen #daringtohopebook Amen #daringtohopebook
Received this call in the mail today from the swee Received this call in the mail today from the sweetest kiddos. I love it and it made my day! So sweet and thoughtful. 💕😍💕
My dear and sweet friend Josie who I met at CIU (w My dear and sweet friend Josie who I met at CIU (walker 1 Girls) came to visit with her daughter Lydia. They are on a road trip from Ohio and I’m grateful they came by for the afternoon. It was good for my soul. #thankful #friendship #encouragement 💕💕💕
I’m not the only one in my happy place. I love m I’m not the only one in my happy place. I love my Sissy girl 💕🐕💕 #happy #dogsofinstgram #sissy
I love my Sissy Girl! 💕🐕 I love my Sissy Girl! 💕🐕
Happy Wednesday! So thankful for this Scripture an Happy Wednesday! So thankful for this Scripture and the anchor I have in Christ no matter what my circumstances are. He is my hope! ⚓️
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