Happy Wednesday friends. It’s the middle of the week and I pray wherever you are that your week is going well. It is a rainy Wednesday here. I’ve been awake since 4am. I’m not getting much sleep these days due to pain and not being able to relax. I can definitely relate to the moms out there who have to be up all hours of the night. It is not fun but I’m hoping as the infections improve that I will start sleeping better. It’s only 11:30am and I feel like it’s already been a long day.
I had an appointment with the infectious disease doctor in Gastonia earlier today. Overall that went well. Last time he treated me with a one time dose of meds through the iv. This is a new drug that’s very powerful and it stays in your system 4-6 weeks. In addition,he also prescribed an extremely large dose of oral antibiotics each day. Overall, I am seeing some improvement so he is going to keep me on the same oral dose for three more months. These meds are harsh and hard on my system but if my infection stays down it’s worth it. Doing the infusion again soon is another option if I need it. While it is good these meds are working, I eventually will be resistant and they will have to do something else. Once I go off meds it is guaranteed the infection will return. Basically it will always be there but the meds help control it. I see a urology nurse practitioner in May and then the urologist in October. My case is so complicated most doctors don’t want to treat my bladder issues. However, in October and maybe even May, I will know if surgery is an option or not. Hopefully these antibiotics will continue to help the infection and allow me to build my strength up. This summer my prayer is to be out of bed more and able to get in the pool each day, but we shall see.
I am trying to live with the attitude of gratitude today and so thankful for these small improvements. I still have a long road ahead but I’m so thankful for Jesus who carries me each step of the way.
When I am weak He is strong (2 Corinthians 12:9).
Thanks again to all of my prayer warriors who daily lift me up to the Father. It means the world to me and my family!